Participate in Research

• One online meeting per month
• Discussions about recovery and rehab
• Compensation provided

• Adults or Caregivers of adults with stroke, TBI, or SCI
• 1-8 years after injury
• Received rehabilitation in Alberta

• Track patient recovery across settings
• Use data to improve care
• Do research using routinely collected data

You may be eligible to participate in a study exploring a brief online therapy designed to support family and friend caregivers of long-term care residents.

If you are interested in participating, please follow this link: https://uregina.eu.qualtrics.com/jfe/form/SV_2rdshQCOjY9uBcG

For more information about this study, please contact:

Kelsey Haczkewicz (Principal Investigator) at kmh978@uregina.ca or

Natasha Gallant (Supervisor) at arcresearch@uregina.ca.

This study has been approved by the Health PEI Research Ethics Board.

We want to understand your experiences as South Asian families who have cared for a loved one with a terminal illness.

Participant criteria

• South Asian family members (18+)
• Supported a loved one from diagnosis to death
• Bereaved family member (at least 1 year after loss)
• Able to speak and understand English

Participation involves an in-person or online 60 to 90-minute individual OR group interview with other members of your family.

Your story can help us better understand and improve support for South Asian families facing terminal illness and life after loss.

For more details, please contact: Tarleen Dhanoa at Tdhanoa@ualberta.ca. This study (ID #Pro00158278) has been reviewed for it’s adherence to ethical guidelines by a Research Ethics Board at the University of Alberta.

We are inviting older adults to take part in a study exploring the use of Voiced Memories, a photo-assisted digital reminiscence tool designed to

support memory, emotional well-being, and social connection.

Who can participate?

• Be 65 years of age or older
• Be able to provide informed consent
• Have basic hearing and vision adequate to engage in the sessions
• Feel comfortable communicating in English

Participants may choose to join either of the following

• Memory Café Session (group-based)
• House-Use Session (home-based)

Possible Benefits of Participation

• Stimulation of thinking and emotional reflection
• Strengthen identity and reduce isolation through sharing
• Building or deepening social connections
• The process can be therapeutic

Interested in Participating? Contact Us! (780) 600 1803 or mdkhursh@ualberta.ca.

Are you providing care for someone? We are recruiting young carers as research study participants.

How can we support young caregivers? What would make things better for you? Let’s talk.

Eligibility for participation

• Age 12-30 years
• Assisting a family member or friend
• Residing in Canada

What you can expect

• Share your experience as a young person supporting someone you care about.
• Express yourself through an arts-based activity (optional)
• All participation is voluntary, and your identity will be kept confidential.
• You will receive a gift card in appreciation of your participation.

You may not refer to yourself as a “young carer” but for this study what we mean is someone under age 30 who provides unpaid support, care or assistance to a family member or friend. What does being a young carer mean to you?

To participate, contact: www.ingauge.ca or ingauge@umanitoba.ca. Approved by the University of Manitoba Research Ethics Board.

Are you caring for a loved one with Dementia?

• Do thoughts about your caregiving responsibilities often weigh you down or keep you up at night?
• Do you find yourself repeatedly thinking the same things over and over?
• Do you often ruminate on past events and worry about future concerns, causing you to feel upset?
• Are your thoughts burdensome, uncontrollable, or distracting?

About the Mind-AID Study

• We are exploring an online mindfulness program specifically designed to assist caregivers like you.
• Our goal is to help reduce repetitive negative thinking, including worry and rumination, thereby enhancing your overall well-being.

Who Can Participate?

• This study might be right for you if you are a family member or friend providing care for someone with dementia and experiencing stress related to your caregiving role.
• To learn more about the study and determine your eligibility, go to https://mindaid.ulaval.ca.

What Does Participation Involve?

• Participating in an 8-week online program, designed to easily fit into your schedule.
• Completing surveys to share your experience and well-being.

Benefits of Participating

• Acquire new mindfulness strategies to effectively manage negative thoughts and stress.
• Make a meaningful contribution to research aimed at improving caregivers support services.

Contact us at mindaid@ulaval.ca. This study has received ethics clearance through a CIUSSS West-Central Montreal (#FIIP-38896-2024-3867).

We are looking for 24 study participants for a study aimed at understanding the lived COPD experiences and support groups for persons living with COPD and their informal caregivers.

The study includes a 90 minute virtual interview and participants will receive a gift card as compensation.

Eligibility Criteria

• Have COPD or be an informal caregiver of someone with COPD
• Be a current or former (within 5 years) support group member
• Be 18 years or older
• Currently living in Canada
• Be able to communicate in English
• Have internet or phone access
• Be willing to participate in audio-recorded focus groups

Exclusion Criteria

• Support group members who neither have COPD nor are informal caregivers of someone with COPD
• Professional care providers for people with COPD

If interested in participating, please go to: https://uwo.eu.qualtrics.com/jfe/form/SV_bKmVuVlhO5ctNHg

For more information about this study or to participate, please contact:

Dr. Shannon Sibbald, Principal Investigator, School of Health Studies, University of Western Ontario at ssibbald@uwo.ca.

Join a 1-hour online focus group exploring how music supports your emotional wellbeing. We’re building a new wellness app based on real experiences—and we want to hear yours.

Receive a $20 Amazon gift card.

You can participate if you are 18+ and identify as any of the following

• A post-secondary student
• A young adult or working adult
• A caregivers for someone with support needs
• A music therapist or other mental health/healthcare professional

Click the link to indicate your interest: https://forms.gle/8WgGyfKFs2aXBUFw7

If you would like more information or have questions, please contact Renee Pi (ruoyan.pi@jbmusic.ca). This study is approved by the Health Research Ethics Board of Alberta (HREBA.CHC-25-0048)

This study is exploring multiple caregivers who care for people with different care needs (e.g., a child and an adult with a disability or a child and a senior) rather than multiple caregivers who care for people with the same care needs (e.g., a parent caring for multiple children). If you are a multiple caregiver and interested in participating in an interview about your caregiving experience, please fill out the pre-screening survey for the study.

The survey should take less than 5 minutes to fill out. https://forms.office.com/r/S3eiYT6bvu.

After filling out the survey, you may be contacted to schedule a phone or video (Zoom) interview. During this interview, you will be asked to share about your experience as a caregiver, what a typical weekday looks like for you, the impacts of your care responsibilities, and what government support might make these easier.

For more information about the research project, contact k.benjamin@mail.utoronto.ca. To learn more about the project visit https://cgsp-cpsm.ca/projects/caring-across-generations/.

This research has been approved by the University of Toronto Human Research Ethics Board (Protocol #00048651).

As a thank you, interview participants will receive a $25 President’s Choice gift card.

To improve decision-making about driving for older adults by using mobile technology. The study involves two visits to the University of Calgary Main Campus, and using a Driving Monitoring Device in your vehicle for 8 weeks.

This research project is open to all active drivers 65 years or older who are diagnosed with mild cognitive impairment or mild dementia.

You will be reimbursed for your participation. This study will not affect your driver’s license.

The University of Calgary Conjoint Facilities Research Ethics Board has approved this study (REB23-1104).

To participate, contact 1-587-973-3930 or Shahab.alizadeh@ucalgary.ca. Please be advised that communications via e-mail are not absolutely secure. Thus, please do not communicate personal sensitive information via e-mail.

If so, the Zwar Social Psychology of Aging Lab at Brock University invites YOU to participate in an online survey to help them understand the beliefs and attitudes about informal (unpaid) caregiving for older adults.

To be eligible, you must

• Be between 18 and 95 years of age
• Are currently an unpaid caregiver to a relative or friend who is aged 60 years or olde
• Have been providing care or support for at least 6 months or longer
• Speak fluent English
• Have access to the internet

The study will be delivered through an online survey and will take approximately 30 minutes of your time. You need internet access to participate.

In appreciation of your support, you can enter a draw to win 1 of 5 $50 Walmart gift cards by providing a working email address.

If you are interested in participating, please click on the link to take the survey: https://brock.ca1.qualtrics.com/jfe/form/SV_01bW5ZQ8Xs9Up8i

The study has been approved by the Research Ethics Review Board at Brock University (REB 24-294-ZWAR). For more information, feel free to contact Dr. Larissa Zwar, Brock University, at the Zwar Social Psychology of Aging Lab: zwarlab@brocku.ca

Do you have a loved one living with dementia? We are looking for people to participate in a research study about dementia-related changes.

We would love to hear your perspective. You will be entered into a draw to win one of fifty $60 gift cards.

To participate email caregivers.coop@ucalgary.ca.

The University of Calgary Conjoint Faculties Research Ethics Board has approved this study (REB23-1692, Principal Investigator Dr. Brandy Callahan).

We are looking for participants to help explore and prioritize ICU communication solutions to facilitate patients and family centred care.

Research Study Details

• Surveys (30 minutes) – Complete a series of consensus building surveys.
• Focus Groups (Optional 1 hour) – Co-develop explanations for why some solutions could be prioritized over others
• Compensation – participants will be compensated for their time.

We would love to hear from you if:

• You Have Received-Care – ICU patients and their loved ones, patient health advocates
• You Provide Care – multidisciplinary healthcare providers
• You Facilitate Care – healthcare administrators, policy makers

For more information about the study, or to participate in the national Delphi study, please feel free to contact Research Coordinator, Kyle Hertes, at connect-icu@usask.ca.

If you have any questions, please let me know and thank you for your help with this. Original email from research below and files attached in case you need them.

Help improve lung cancer care by sharing your experience.

The PROPEL study is gathering real-world insights from people with a lung cancer diagnosis and those who care for them. By sharing your experiences, you can help improve access to life-saving precision medicine and shape the future of lung cancer care. Your voice will help researchers and policymakers understand the real-world impact of treatments, identify gaps in care, and push for meaningful change.

Who can participate

This study is open to anyone with a diagnosis of lung cancer and anyone who identifies as providing a caregiving role – physical, practical, social or emotional – to someone with lung cancer.

How to participate

https://redcap.ucalgary.ca/surveys/?s=MJHERNF8KPXYDTFM

Why Participate?

You’re invited to participate in the SHINE study exploring positive parenting and children’s psychosocial health outcomes.

Who Can Join?

• Are you the parent of at least one child age 5-12 years?
• Do you live in Canada?
• Are you able to read and write in English?

How to Participate?

https://uwo.eu.qualtrics.com/jfe/form/SV_82NYgJB1cAQJbPo?Q_CHL=qr

Contact Information:

For More information please contact: Julia Yates (jyates23@uwo.ca), Dr. Katie Shillington (*kshilli4@uwo.ca), or Dr. Tara Mantler (Principal Investigator; tara.mantler@uwo.ca).

Who can participate?

We’re inviting unpaid family and friend caregivers of older adults after a stroke. Participants must be living in Canada, be at least 18 years old, and able to read and write in English.

What does participation involve?

As a participant, you’ll provide general information such as gender and occupation. Additionally, you’ll be asked to rate the acceptability of intervention programs designed to support preparedness amongcaregivers of older adults after stroke. The entire survey should take you approximately 15-20 minutes to complete.

Contact Information:

For more information or to participate, please contact: Fernanda Dal Pizzol at fenglerd@ualberta.ca.

How to Participate:

https://redcap.ualberta.ca/surveys/?s=TTWHRCJRXFRRJFYF 

If you’re a healthcare professional familiar with working with individuals who have experienced a stroke and their caregivers, we want to hear from you! Share your experiences and insights by participating in our survey.

Who can participate?

We’re inviting nurses, physicians, physical therapists, occupational therapists, social workers, speech and language therapists, dieticians, or psychologists who have experience in providing support for persons with stroke. Participants must be living in Canada, be at least 18 years old, and able to read and write in English.

What does participation involve?

As a participant, you’ll provide general information such as gender and occupation. Additionally, you’ll be asked to rate the acceptability of intervention programs designed to support preparedness among unpaid family and friend caregivers of older adults after stroke. The survey should take you approximately 15-20 minutes to complete.

Contact information:

For more information or to participate, please contact: Fernanda Dal Pizzol at fenglerd@ualberta.ca.

How to Participate:

https://redcap.ualberta.ca/surveys/?s=TCACRW8399KMNWLJ 

A double-duty caregiver is a  health-care worker who also provides care outside of work to a family member or friend who is ill, disabled or frail. Juggling care at work and at home can be very stressful. Dr. Jasneet Parmar, a professor in the Department of Family Medicine at the University of Alberta, and her research team want to understand how the COVID-19 pandemic and double-duty caregiving has impacted Canadian health-care providers’ caregiving and work experiences.

We think that double-duty caregiving in COVID-19 may have had a significant impact on double-duty caregivers’ health and well-being. A small, mixed-methods study involved a survey for employers (n=29) and interviews with double-duty caregivers (n=16) found that health-care providers who work in health care and also care for an ill, frail or disabled family member or friend at home without pay are:

1. Experiencing an increased care load, working greater hours, and have increased fears of safety, resulting in physical and emotional strain
2. Unable to access support networks and services that supported their care tasks due to COVID-19, resulting in double-duty caregivers’ high care-load, stress level and burnout.

Read more

Dr. Jasneet  Parmar and her team from the University of Alberta are inviting all Canadian health-care providers who are also family caregivers to complete a survey on the secure REDCap survey platform. It will take you about 20 minutes to complete. The link to the survey is https://redcap.ualberta.ca/surveys/?s=JTPYHL9DFY3EWXEN.

Dr. Parmar and her team are using validated scales – Double-Duty Caregiving Scale, DeJong-Gierveld Loneliness Scale, and The Six-Item State Anxiety Scale (a validated short-form of the State-Trait Anxiety Inventory), which will allow them to compare results of this study after two years of the COVID-19 pandemic with pre-pandemic results on the same scales. The study has been approved by the University of Alberta Health Research Ethics Board – Study Number: Pro00117700.

For more information or if you have questions, please contact Dr. Sharon Anderson by email at sdanders@ualberta.ca or text (780) 953-5541.

Siblings Canada and the Centre for Addiction and Mental Health are partnering on this survey on how organizations that provide services to adults living with disabilities support their typically developing siblings. The short survey (20 questions) will be used to better guide and inform how the sibling caregivers of adults with disabilities are served.

To participate you must be employed by a service agency.

Take the survey

Are you or have you been a caregiver for someone with dementia, either as a friend/family member or as a professional?

CAN-PROTECT is an online study of brain aging that explores the health and wellness of all Canadians.

We are also looking for participants who are current or past caregivers, who can be:

For more information, please visit www.can-protect.ca
You can also email us with questions at CAN.PROTECT@ucalgary.ca

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board, Ethics ID# REB21-1065

Join Study

CAN-PACT (Canadian Network for Psychedelic-Assisted Cancer Therapy) is inviting specific voices to take part in a short survey to help identify the top unanswered questions about psychedelic-assisted cancer therapies.

We are looking for

• People with current or past cancer
• Caregivers supporting someone with cancer
• Clinicians working in oncology, any discipline
• Healthcare policymakers

Your questions will help guide future research priorities.

Take the survey: https://survey.ucalgary.ca/jfe/form/SV_czITXUHWzlAsUtM

Questions? Contact Nisha Marshall at nisha.marshall@ucalgary.ca.

• • Are a Canadian Resident who can speak English or French
  • Live at home (not a care home)
  • Able to respond to questions about yourself and assistive technology product (ex.  mobile phone apps that provide calendar reminders, switches that turn off stoves, or walkers) and service use
  • Have a score of 25 or below on the Montreal Cognitive Assessment (will be conducted by research team prior to interview)
  • Able to provide consent (or assent, with substitute decision providing consent)

• • Are a Canadian resident who can speak English or French
  • Family or friend who provides 5 or more hours of support a week for someone with dementia living at home (not a care home)
  • Able to respond to questions about yourself and your assistive technology product and service use
  • Able to provide consent

• • Are a Canadian resident who can speak English or French
  • A healthcare provider (such as a physician, nurse, therapist, social worker, occupational therapist, physical therapist etc.) who works with persons living with dementia

• • 15-minute Montreal Cognitive Assessment (MoCA) prior to participation to confirm eligibility
  • Eligible individuals will take part in an initial 90-minute interview
  • Those who choose to participate longitudinally will complete three additional 30-minute interviews over the following three years, with a MoCA administered before each session Participants may stop participating at any time.

• • 45-minute survey in year one
  • Participants who opt into the longitudinal component will also complete three 30-minute follow-up interviews in the following three years. Participants may stop participating at any time.

• South Asian family members (18+)
• Supported a loved one from diagnosis to death
• Bereaved family member (at least 1 year after loss)
• Able to speak and understand English