Are you an informal caregiver? Do you care for a person with concurrent disorders – that is, who has a mental and substance use disorder. If yes, we want to learn about your experiences supporting someone with concurrent disorders.

You may qualify if you meet these criteria:

• 15 years of age or older
• Provides unpaid care for a person (i.e., family member or friend) (15 years of age or older) with concurrent disorders
• Is a self-reported primary caregiver to a person with concurrent disorders
• Resides in Canada
• Sufficiently proficient in the English language
• Ability to provide informed consent to participate in the study

What is Involved?

• Participate in a 1-hour virtual (Zoom) interview
• Receive $25 in compensation for your time
• Contribute to an important topic of research

How Can I Participate?

• Complete the form: https://forms.office.com/r/u7P81Ez1yp

For more information, please contact Susan Palijan, PhD Candidate Health Systems Research, University of Toronto at susan.palijan@mail.utoronto.ca.

If so, the Zwar Social Psychology of Aging Lab at Brock University invites YOU to participate in an online survey to help them understand the beliefs and attitudes about informal (unpaid) caregiving for older adults.

To be eligible, you must:

• Be between 18 and 95 years of age
• Are currently an unpaid caregiver to a relative or friend who is aged 60 years or olde
• Have been providing care or support for at least 6 months or longer
• Speak fluent English
• Have access to the internet

The study will be delivered through an online survey and will take approximately 30 minutes of your time. You need internet access to participate.

In appreciation of your support, you can enter a draw to win 1 of 5 $50 Walmart gift cards by providing a working email address.

If you are interested in participating, please click on the link to take the survey: https://brock.ca1.qualtrics.com/jfe/form/SV_01bW5ZQ8Xs9Up8i

The study has been approved by the Research Ethics Review Board at Brock University (REB 24-294-ZWAR). For more information, feel free to contact Dr. Larissa Zwar, Brock University, at the Zwar Social Psychology of Aging Lab: zwarlab@brocku.ca

Do you have a loved one living with dementia? We are looking for people to participate in a research study about dementia-related changes.

We would love to hear your perspective. You will be entered into a draw to win one of fifty $60 gift cards.

To participate email caregivers.coop@ucalgary.ca.

The University of Calgary Conjoint Faculties Research Ethics Board has approved this study (REB23-1692, Principal Investigator Dr. Brandy Callahan).

We are looking for participants to help explore and prioritize ICU communication solutions to facilitate patients and family centred care.

Research Study Details:

• Surveys (30 minutes) – Complete a series of consensus building surveys.
• Focus Groups (Optional 1 hour) – Co-develop explanations for why some solutions could be prioritized over others
• Compensation – participants will be compensated for their time.

We would love to hear from you if:

• You Have Received-Care – ICU patients and their loved ones, patient health advocates
• You Provide Care – multidisciplinary healthcare providers
• You Facilitate Care – healthcare administrators, policy makers

For more information about the study, or to participate in the national Delphi study, please feel free to contact Research Coordinator, Kyle Hertes, at connect-icu@usask.ca.

If you have any questions, please let me know and thank you for your help with this. Original email from research below and files attached in case you need them.

Help improve lung cancer care by sharing your experience.

The PROPEL study is gathering real-world insights from people with a lung cancer diagnosis and those who care for them. By sharing your experiences, you can help improve access to life-saving precision medicine and shape the future of lung cancer care. Your voice will help researchers and policymakers understand the real-world impact of treatments, identify gaps in care, and push for meaningful change.

Who can participate:

This study is open to anyone with a diagnosis of lung cancer and anyone who identifies as providing a caregiving role – physical, practical, social or emotional – to someone with lung cancer.

How to participate:

https://redcap.ucalgary.ca/surveys/?s=MJHERNF8KPXYDTFM

Why Participate?

You’re invited to participate in the SHINE study exploring positive parenting and children’s psychosocial health outcomes.

Who Can Join?

• Are you the parent of at least one child age 5-12 years?
• Do you live in Canada?
• Are you able to read and write in English?

How to Participate?

https://uwo.eu.qualtrics.com/jfe/form/SV_82NYgJB1cAQJbPo?Q_CHL=qr

Contact Information:

For More information please contact: Julia Yates (jyates23@uwo.ca), Dr. Katie Shillington (*kshilli4@uwo.ca), or Dr. Tara Mantler (Principal Investigator; tara.mantler@uwo.ca).

• We’re excited to invite you to participate in a survey to understand the challenges, support needs and academic experiences.
• This research aims to gain a comprehensive understanding of the challenges student caregivers face, their support needs, and how post- secondary institutions can better support students balancing caregiving and academic responsibilities.
• This study has been approved by your respective institutional REB and the Research Ethics Board of the University of Alberta

To learn more about our study, contact research coordinator: Dr. Sharon Anderson at sdanders@ualberta.ca and/or Onutobor (Tobi) Omu at oomu@bowvalleycollege.ca.

We are looking for people living with dementia and caregivers of people living with dementia to invite you to participate in a study being conducted by University of Alberta researchers about evaluating artificial intelligence-generated responses to questions regarding dementia.

We are doing a study, which is conducted by University of Alberta researchers, to evaluate artificial intelligence-generated responses from ChatGPT, to commonly asked questions about dementia.  Five commonly asked questions on dementia were entered into ChatGPT, and the ChatGPT responses were recorded.  Geriatricians were also asked to provide a response to each of the five questions.

We are lookingfor people living with dementia, and caregiver of people living with dementia for this study.  The study involved completion of an online survey which asks you to provide your opinions on the accuracy, ease of understanding, comprehensiveness and relevance of each of these responses via an anonymous electronic survey.  The survey will take approximately 15 – 20 minutes to complete.  The survey can be accessed via this link .  Your participation is voluntary.

If you have any questions about this study or the survey, please contact Dr Rebecca Lee (Phone: 780-492-5338; Email: rebecca4@ualberta.ca). (University of Alberta Research Ethics Board ID: Pro00153942)

Your voice matters. Whether you’re supporting a parent, spouse, or friend, your experiences can help shape better support for caregivers like you.

Why Participate?

• Contribute to research that can improve caregiver support
• Help shape policies and programs that benefit caregivers

Who Can Join?

• Individuals providing unpaid care to a family member, parent or friend
• Caregivers of any age, background or experience level

How To Participate?

Participating is simple and can be done online. Interviews will be conducted anonymously via Zoom, ensuring your privacy. Your insights will remain confidential and will be used to improve caregiver support services.

Contact elewis@ifa.ngo to get started!

Who can participate?

We’re inviting unpaid family and friend caregivers of older adults after a stroke. Participants must be living in Canada, be at least 18 years old, and able to read and write in English.

What does participation involve?

As a participant, you’ll provide general information such as gender and occupation. Additionally, you’ll be asked to rate the acceptability of intervention programs designed to support preparedness amongcaregivers of older adults after stroke. The entire survey should take you approximately 15-20 minutes to complete.

Contact Information:

For more information or to participate, please contact: Fernanda Dal Pizzol at fenglerd@ualberta.ca.

How to Participate:

https://redcap.ualberta.ca/surveys/?s=TTWHRCJRXFRRJFYF 

If you’re a healthcare professional familiar with working with individuals who have experienced a stroke and their caregivers, we want to hear from you! Share your experiences and insights by participating in our survey.

Who can participate?

We’re inviting nurses, physicians, physical therapists, occupational therapists, social workers, speech and language therapists, dieticians, or psychologists who have experience in providing support for persons with stroke. Participants must be living in Canada, be at least 18 years old, and able to read and write in English.

What does participation involve?

As a participant, you’ll provide general information such as gender and occupation. Additionally, you’ll be asked to rate the acceptability of intervention programs designed to support preparedness among unpaid family and friend caregivers of older adults after stroke. The survey should take you approximately 15-20 minutes to complete.

Contact information:

For more information or to participate, please contact: Fernanda Dal Pizzol at fenglerd@ualberta.ca.

How to Participate:

https://redcap.ualberta.ca/surveys/?s=TCACRW8399KMNWLJ 

What the study involves:

• 45-60 minute audio recorded virtual interview in English exploring your menopausal symptoms and their impact on your life, activities of daily living, and caregiving responsibilities.

You may be eligible to participate if you…

• Are at menopause (defined as 12 months after final menstrual cycle) and up to five years post menopause.
• Have not received a hysterectomy or other interventions that induced menopause.
• Are a caregiver to a spouse, parent/in-law, or adult child who has a disability or is chronically ill. A caregiver is defined as someone who assists with any activity [e.g. toileting, dressing, cooking, banking, transportation, etc.] at least once per week for the past 6+ months without financial compensation.

Benefits include:

• Supporting the development of occupational therapy clinical practice.
• Promoting increased awareness about menopause.

Contact us if you want to participate! ot.menopause@utoronto.ca

This project aims to better understand the rapid scaling up of telerehabilitation and draw a portrait of telerehabilitation telepractices in Canada in order to create tools to facilitate the adoption of telerehabilitation based on best practices from an ethical point of view. The results of the survey will help us identify obstacles, facilitators and ethical issues in order to support the scaling up and sustainability of telerehabilitation in Canada. The survey is confidential and lasts approximately 15 to 20 minutes.

This survey is for you if:

• someone that you know has benefited from remote rehabilitation (i.e., telerehabilitation ) at least once AND you have helped them to benefit from this service or
• someone you know has not benefited from remote rehabilitation, only face-to-face with their therapist, but you would like to give your opinion on telerehabilitation as their caregiver
• We invite you to participate in our survey lasting approximately 20 minutes in the context of our study entitled:

Link to survey for patients: 

https://bit.ly/Sondage_Patients_Telereadaptation_Patients_Telerehabilitation_Survey 

 Link to survey caregivers:  

https://bit.ly/Sondage_Prochesaidants_Telereadaptation_Caregivers_telerehabilitation_survey

Questions:

• Contact Dahlia Kairy at 514-343-6111 ext. 14691 or at dahlia.kairy@umontreal.ca for a paper version or if you need help completing the survey.

A double-duty caregiver is a  health-care worker who also provides care outside of work to a family member or friend who is ill, disabled or frail. Juggling care at work and at home can be very stressful. Dr. Jasneet Parmar, a professor in the Department of Family Medicine at the University of Alberta, and her research team want to understand how the COVID-19 pandemic and double-duty caregiving has impacted Canadian health-care providers’ caregiving and work experiences.

We think that double-duty caregiving in COVID-19 may have had a significant impact on double-duty caregivers’ health and well-being. A small, mixed-methods study involved a survey for employers (n=29) and interviews with double-duty caregivers (n=16) found that health-care providers who work in health care and also care for an ill, frail or disabled family member or friend at home without pay are:

1. Experiencing an increased care load, working greater hours, and have increased fears of safety, resulting in physical and emotional strain
2. Unable to access support networks and services that supported their care tasks due to COVID-19, resulting in double-duty caregivers’ high care-load, stress level and burnout.

Read more

Dr. Jasneet  Parmar and her team from the University of Alberta are inviting all Canadian health-care providers who are also family caregivers to complete a survey on the secure REDCap survey platform. It will take you about 20 minutes to complete. The link to the survey is https://redcap.ualberta.ca/surveys/?s=JTPYHL9DFY3EWXEN.

Dr. Parmar and her team are using validated scales – Double-Duty Caregiving Scale, DeJong-Gierveld Loneliness Scale, and The Six-Item State Anxiety Scale (a validated short-form of the State-Trait Anxiety Inventory), which will allow them to compare results of this study after two years of the COVID-19 pandemic with pre-pandemic results on the same scales. The study has been approved by the University of Alberta Health Research Ethics Board – Study Number: Pro00117700.

For more information or if you have questions, please contact Dr. Sharon Anderson by email at sdanders@ualberta.ca or text (780) 953-5541.

Dr. Jasneet Parmar and her research team from the University of Alberta and University of Calgary are conducting a research study to determine how the current COVID-19 pandemic has impacted family caregivers in Alberta.

In the United Kingdom, the pandemic has increased family caregivers work by 10 hours per week. Dr. Parmar and her team would like to explore if the COVID-19 protocols have had a similar impact on family caregivers in Alberta and hopefully identify areas where we can learn from this experience and better inform pandemic planning in the future.

We invite you to complete this short survey about your experience during the COVID-19 pandemic. It should only take about 20 minutes to complete.

Siblings Canada and the Centre for Addiction and Mental Health are partnering on this survey on how organizations that provide services to adults living with disabilities support their typically developing siblings. The short survey (20 questions) will be used to better guide and inform how the sibling caregivers of adults with disabilities are served.

To participate you must be employed by a service agency.

Are you or have you been a caregiver for someone with dementia, either as a friend/family member or as a professional?

CAN-PROTECT is an online study of brain aging that explores the health and wellness of all Canadians.

We are also looking for participants who are current or past caregivers, who can be:

For more information, please visit www.can-protect.ca
You can also email us with questions at CAN.PROTECT@ucalgary.ca

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board, Ethics ID# REB21-1065