Caregivers Alberta relies on high-quality research to inform how we support and empower caregivers. By participating in research, you can help influence the future of caregiver support in our province.

Current Research Opportunities

Menopause and Caregiving: A Qualitative Exploration

What the study involves:

  • 45-60 minute audio recorded virtual interview in English exploring your menopausal symptoms and their impact on your life, activities of daily living, and caregiving responsibilities.

You may be eligible to participate if you…

  • Are at menopause (defined as 12 months after final menstrual cycle) and up to five years post menopause.
  • Have not received a hysterectomy or other interventions that induced menopause.
  • Are a caregiver to a spouse, parent/in-law, or adult child who has a disability or is chronically ill. A caregiver is defined as someone who assists with any activity [e.g. toileting, dressing, cooking, banking, transportation, etc.] at least once per week for the past 6+ months without financial compensation.

Benefits include:

  • Supporting the development of occupational therapy clinical practice.
  • Promoting increased awareness about menopause.

Contact us if you want to participate! ot.menopause@utoronto.ca

Avoiding pitfalls of virtual care: paving the road for more ethical and equitable standards of practice in rehabilitation

This project aims to better understand the rapid scaling up of telerehabilitation and draw a portrait of telerehabilitation telepractices in Canada in order to create tools to facilitate the adoption of telerehabilitation based on best practices from an ethical point of view. The results of the survey will help us identify obstacles, facilitators and ethical issues in order to support the scaling up and sustainability of telerehabilitation in Canada. The survey is confidential and lasts approximately 15 to 20 minutes.

This survey is for you if:

  • someone that you know has benefited from remote rehabilitation (i.e., telerehabilitation ) at least once AND you have helped them to benefit from this service or
  • someone you know has not benefited from remote rehabilitation, only face-to-face with their therapist, but you would like to give your opinion on telerehabilitation as their caregiver
  • We invite you to participate in our survey lasting approximately 20 minutes in the context of our study entitled:

Link to survey for patients: 

https://bit.ly/Sondage_Patients_Telereadaptation_Patients_Telerehabilitation_Survey 

 Link to survey caregivers:  

https://bit.ly/Sondage_Prochesaidants_Telereadaptation_Caregivers_telerehabilitation_survey

Questions:

  • Contact Dahlia Kairy at 514-343-6111 ext. 14691 or at dahlia.kairy@umontreal.ca for a paper version or if you need help completing the survey.

Survey on Double-Duty Caregivers

A double-duty caregiver is a  health-care worker who also provides care outside of work to a family member or friend who is ill, disabled or frail. Juggling care at work and at home can be very stressful. Dr. Jasneet Parmar, a professor in the Department of Family Medicine at the University of Alberta, and her research team want to understand how the COVID-19 pandemic and double-duty caregiving has impacted Canadian health-care providers’ caregiving and work experiences.

We think that double-duty caregiving in COVID-19 may have had a significant impact on double-duty caregivers’ health and well-being. A small, mixed-methods study involved a survey for employers (n=29) and interviews with double-duty caregivers (n=16) found that health-care providers who work in health care and also care for an ill, frail or disabled family member or friend at home without pay are:

  1. Experiencing an increased care load, working greater hours, and have increased fears of safety, resulting in physical and emotional strain
  2. Unable to access support networks and services that supported their care tasks due to COVID-19, resulting in double-duty caregivers’ high care-load, stress level and burnout.

Read more

Dr. Jasneet  Parmar and her team from the University of Alberta are inviting all Canadian health-care providers who are also family caregivers to complete a survey on the secure REDCap survey platform. It will take you about 20 minutes to complete. The link to the survey is https://redcap.ualberta.ca/surveys/?s=JTPYHL9DFY3EWXEN.

Dr. Parmar and her team are using validated scales – Double-Duty Caregiving Scale, DeJong-Gierveld Loneliness Scale, and The Six-Item State Anxiety Scale (a validated short-form of the State-Trait Anxiety Inventory), which will allow them to compare results of this study after two years of the COVID-19 pandemic with pre-pandemic results on the same scales. The study has been approved by the University of Alberta Health Research Ethics Board – Study Number: Pro00117700.

For more information or if you have questions, please contact Dr. Sharon Anderson by email at sdanders@ualberta.ca or text (780) 953-5541.

How has COVID-19 affected Alberta family caregivers?

Dr. Jasneet Parmar and her research team from the University of Alberta and University of Calgary are conducting a research study to determine how the current COVID-19 pandemic has impacted family caregivers in Alberta.

In the United Kingdom, the pandemic has increased family caregivers work by 10 hours per week. Dr. Parmar and her team would like to explore if the COVID-19 protocols have had a similar impact on family caregivers in Alberta and hopefully identify areas where we can learn from this experience and better inform pandemic planning in the future.

We invite you to complete this short survey about your experience during the COVID-19 pandemic. It should only take about 20 minutes to complete.

Supporting Sibling Caregivers

Siblings Canada and the Centre for Addiction and Mental Health are partnering on this survey on how organizations that provide services to adults living with disabilities support their typically developing siblings. The short survey (20 questions) will be used to better guide and inform how the sibling caregivers of adults with disabilities are served.

To participate you must be employed by a service agency.

CAN-PROTECT Online Study of Brain Aging

Are you or have you been a caregiver for someone with dementia, either as a friend/family member or as a professional?

CAN-PROTECT is an online study of brain aging that explores the health and wellness of all Canadians.

We are also looking for participants who are current or past caregivers, who can be:

  • Health care or personal care aids
  • Home care staff
  • Long-term care staff
  • Friends or family
  • Paid companions
  • Recreational therapists
  • Occupational therapists
  • Physicians
  • Nurses
  • Etc.

For more information, please visit www.can-protect.ca
You can also email us with questions at CAN.PROTECT@ucalgary.ca

This study has been approved by the University of Calgary Conjoint Health Research Ethics Board, Ethics ID# REB21-1065