By participating in research, you have the opportunity to influence the supports that are developed for caregivers.

What Do Patients and Families Want and Expect from Advance Care Planning?

Advance Care Planning (ACP) is a process of reflecting on your personal values and goals of care, and setting out you wishes for future medical care. Having an advance care plan in place helps patients and families better prepare for the event of serious illness.  A research team led by PI, Dr. Robin Urquhart, Dalhousie University, and funded by the Canadian Frailty Network has been established to increase the number of people who participate in ACP discussions.

To find out what patients and family/friend caregivers want and expect from ACP, the team will conduct one-on-one telephone interviews (1 hour) with individuals over the age of 65 who are experiencing declining health (e.g., loss of energy, physical ability, cognition, or other health issues) and family/friend caregivers of individuals who are experiencing declining health. If you meet either of these descriptions and would like to share your perspectives with the research team, please contact the study coordinator, Margaret Jorgensen, via email at margaret.jorgensen@ccns.nshealth.ca or telephone at (902) 473-7290. Study period: July 1, 2019-December 31, 2019.

Reducing Stress for Dementia Caregivers

If you’re caring for someone living with dementia, you need help accessing resources in a timely manner so you can cope without feeling overwhelmed. Caregivers Alberta is supporting beta testing of a new Dementia Caregivers Navigation Tool – and we need YOU to participate!

We are looking for current caregivers of persons living with dementia, who are comfortable using computers and smart phones, to help test a new technology tool that will help caregivers manage busy days, promote self-care, and offer better support to those living with dementia. If you’re interested in participating, please respond to Johnna Lowther, our program manager at: jlowther@caregiversalberta.ca or phone direct 587-415-8999 (participants must be from the Edmonton, AB area).